Monday, December 12, 2011

Sensitive Help for Infertility: Where is it?


Back before my first son was born, I had fertility problems.  I remember asking my doctor "why am I not getting pregnant?" and him shrugging his shoulders (and I can still vividly picture this scene in my mind) and saying "you're not getting pregnant because you don't have a cycle.  Your labs are fine so I'm not really sure...but it could come back.  I just don't know when."  Helpful!  I was given the diagnosis of PCOS and put on a regimen of Metformin, Clomid, and some other pill whose name I can't recall, to force me to have somewhat of a normal cycle.  It didn't really seem to be working, so I gave up after a few months (I hate taking pills).  One day in February 2008, I took a pregnancy test; it was positive and I was all but knocked to the floor in shock. It had taken me 18 months since the time I decided I wanted to get pregnant to get pregnant. 16 months of trying for a second child, I got pregnant and lost the pregnancy. A month or two later, I was nearly-knocked-to-the-floor finding out I was pregnant again and 9 months later, gave birth to my second son.  During the whole pre-pregnancy ordeal thinking I would never get pregnant,  I hadn't thought to go to a specialist and I don't know that I ever would have gone to one.  This was also during my pre-investigating-my-adoptedness days, I did look into adoption, and I decided it wasn't for me.  People slapped the "just adopt" cliche out there but other than that, there was no sensitivity for what I was going through.  For some reason, I resisted talking about it in-depth with my adoptive mother who is herself infertile.  Especially when friends who are in the same age group as me start having fertility problems, I can't help but wonder what support there would have been for me if I had never been able to have kids and having to hear "just adopt" pushed in my face constantly, when I didn't want to.  Where is the sensitivity to both infertile people and adoptees (whom people are essentially implying will fix the infertility problems of their parents?)

People who are experiencing fertility problems who know this about me and know that I am also adopted have come to me asking about my experiences.  If I could guess where they are in their thought-process on the whole infertility and parenting ordeal, it would be at the time they are starting to consider that their first preference of biological birth might not be possible and are looking to me to either provide hope that they could be pregnant someday because I got pregnant (what did I do?  Improved my nutrition and saw a therapist--not sure that's the ticket for everyone though) or they are looking for comfort about adoption, something they may be beginning to consider.  I suppose they want me to tell them that adoption makes everything better, that I love being adopted, and that it's just miraculous for everyone involved.

In the past, I do not know how helpful I have really been.  My opinion has always fit into one sentence really: find healing for the pain caused to you by infertility so that if you do decide to adopt (and I mean from foster care because I don't, as a whole, tend to support other types of adoption if someone asks me for my opinion on that) you can then help a child find healing.  This is because I do not believe adoption is a cure for infertility, nor do I believe that the stress and pain caused by infertility magically goes away just because someone adopted. My experience with this is my own, being adopted by infertile parents. My parents always made me feel loved and wanted and let me know I was a real member of their family. However, as someone who loves and am close to my parents, the pain losing the option of biological birth was absolutely not lost on me. I was a smart and intuitive kid (I think most kids are that way). In an effort to try to assuage their pain, I didn't talk a whole lot about adoption or our differences or my identity outside my adoptive family (things I probably really needed to talk about) because I was afraid of hurting their feelings. My conclusion about this, right now as a young adult, is that people slapping "adopt!" in my mother's face as a "cure" to her infertility wasn't all that helpful to her. Her pain was still there: that elephant that always marched into the room whenever I thought about bringing my adoption up kept me from really asking and saying what I wanted to say, to talk about what I really needed to talk about. 

I didn't want to ask a question and then hold my breath while she answered trying to keep her voice from betraying any of her pain.  She didn't even need to speak it; I could feel it.

This wasn't fair to either of us.

I was privy to a conversation a while back where someone said a really positive thing about infertility was adoption.  I didn't say anything because explaining how I feel on the topic means that I have to divulge what I've just divulged now and explain why I feel that way, meaning, I have to talk about my and my mother's experiences with infertility problems and I just didn't feel like doing that at the moment.  But it was eye-opening to me that when so many people hear "infertility" they think "adoption makes it all better."  "Adoption" is the one and only resolution that many people slap out there to infertile people.  When I hear it, I envision a room full of emotions and I giant door with "adoption" painted across it.  The person says "just adopt" and the words cause the door to slam shut on the room.  The emotions and loss are there, ever present, swirling around.  But the nice advice-giver is satisfied that they can't see the emotions any more, case closed, door shut, I fixed your pain for you: "just adopt."

It also makes me wonder if people ever consider the other end, the child, whose job they've announced that it should become to fix the infertility issues, the pain, the loss, the disappointment, of the parent(s) in their life.

As I said, I do not think adoption just magically fixes infertility.  I really think we can do better than this for women, for my own mother.  While adopted children are not second-best to biological children, we are clearly just as awesome, adopting is not the same as giving birth.  Perhaps it is really important to someone for whatever reason to experience pregnancy and have a biologically related child.  Adoption professionals and law have really tried to make it the same with trends such as: matching based on appearance, adopting in ages that reflect a biological birth order, amending and sealing birth documents, the "as-if-born-to" part of the law, and the whole "paper pregnancy" stuff.  These efforts are more a denial of difference and denial of reality than a transformation of adoption to the equivalent of biological birth.  A mother denies that she is very hurt by not being able to be pregnant and having a child with her DNA by saying adoption was the exact same experience.  Likewise, an adoptee's reality of having two different families and two different entrances into those families and the importance of those things to the adoptee gets denied.  I don't see how it is truly possible to honor an adoptee's reality and connection to two families while simultaneously pretending that the adoptive family is identical to a biological family in every single way (remember, "different" does not mean I'm saying "worse").

And then there's another possibility: perhaps the person does not want to adopt or be a parent at all.  Perhaps they've decided not to become parents at all after their ordeal with infertility.  Who offers these individuals support?

I have some friends struggling with infertility who I think may soon come ask me about my experiences.  I will give my usual sentence but I'd actually like to be more helpful than that.  For one thing, what does "find healing" mean?  I do not know of any support groups in our area.  I know of one major infertility newsletter but it is provided by an adoption agency and major themes are tied in with adopting or waiting to adopt.  Every time I've read it, I felt like it served to keep couples focused on adoption as a resolution to their infertility, like the agency was making sure to preserve its long line of waiting customers.  I do not want my friends' pain and emotions used that way.  I also do not know of any good books or resources.  Are there books and resources out there for people who are experiencing infertility that are sensitive to the fact that someone may not want to adopt or that someone might want to deal with infertility on its own, rather than having "just adopt" as a major theme in how or why the author of the book claims they are going to be healed?  I believe women simply deserve better: to have a sensitive response that points them in the direction of healing and support.  I want adoption to always be seen as being about what a child needs, rather than persisting as this insensitive retort that people slap in the faces of infertile people as though it is some service that exists for the primary purpose of assuaging their pain.

For those wondering what I think about this, no, I do not think that giving birth magically makes erases all of the pain and losses caused by infertility and pregnancy loss either.  I spoke specifically about infertility and adoption because this is an adoption blog, not for the purpose of making that contrast or implication that biological birth eradicates all losses.  I personally feel relatively unscathed.  However, having friends who had a far more strenuous ordeal than I did to get pregnant, I know that some losses simply don't magically go away without help and sensitivity.

Any books, websites, blogs or other suggestions for the people I am thinking of who I think might come talk to me, that do not involve "just adopt; all better now!" that I could refer to my friends: please, let me know.

Photo credit: winnond

18 comments:

  1. One resource I recommend is "Navigating the Land of IF." Melissa Ford writes about the 4 ways off the Island of Infertility, including adoption and child-free living.

    http://www.amazon.com/Navigating-Land-Understanding-Infertility-Exploring/dp/1580052622

    Also, Pamela Tsingdinos' wrote "The Silent Sorority" about coming to terms with child-free living. Both women have helped to build supportive communities.

    And this? "I don't see how it is truly possible to honor an adoptee's reality and connection to two families while simultaneously pretending that the adoptive family is identical to a biological family in every single way." Good point.

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  2. My experience as an adoptee was that as I matured, I became fearful that I might be infertile and might "have to adopt." My mother and her only bio daughter had infertility problems. I think my anxiety about infertility was a factor in my decision to marry at age 20 and start trying for children right away.

    I didn't particularly fear adopting, or see it as defective, but I reasoned that if I "had to adopt" I wanted to have plenty of time to consider all of the adoption options open to me. I also knew that adoption was costly.

    I also was aware that infertility problems increase with age, so that's another reason I tried for a pregnancy at such a young age. My older sister didn't start trying for a pregnancy until age 35, and then she found out she had infertility issues. She resisted adopting however, because growing up she had observed that it was hard on our mother to be an adoptive parent.

    I found out quickly that I have no problems with infertility. I can't say I know what it's like, but I do have empathy for the situation, Amanda. I am very sorry for your lost pregnancies.

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  3. Hi Amanda,

    I had planned to adopt. When I met my husband a little later in life he wanted us to try to get PG. When we were unable to concieve it took us down a quick and tumultuous road of infertility. I did my research and kept it a very short road.

    I found many helpful resources at the site linked below. They even have a social worker to discuss the emotional aspects--not just the clinical stuff.

    My experience, I think IF was more about having control of my own body than actually experiencing pregnancy. I am sure this is not the case for many women-- as with most situations in life, everyone had a different experience-- differenct perspective.


    http://www.inciid.org/index.php?page=infertilitysupport

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  4. Hi Amanda - excellent post that ties a lot of different things together in a way I just hadn't. Perhaps the not wanting to talk about my sadness did have a lot to do with my parents infertility. I will have to mull on that for a bit.

    Just wanted to chime in that mom and I have talked alot recently about the fact that while we were growing up she was too busy - every second of the day literally - to go there. But especially since dad passed the pain of not having biological children has resurfaced.

    I too grieve that their genes were not passed on.

    I don't care for the word "healed" for exactly that reason - grief, loss, sadness, can and does resurface at different periods in your life. Saying that, I think using "heal" sets far too many up for failure, which then causes us to beat up on ourselves, instead of just accepting the new phase in our life. At peace, comfortable with, okay with, accepting, are far better in my mind to use both for infertility and adoption loss.

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  5. I feel for the infertile woman - since I am one. Our society has some kind of idiocy that they can't get it through to form a coherent thought that having children is only one aspect of being a woman and not the entirety of being a woman.... Sad.

    I am linking. I hope that is okay.

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  6. My daughter became pregnant easily the first time. Then she developed secondary infertility and waited 8 years to conceive her second child. I never had any fertility difficulties. In fact, I sepent most of my adulthood trying to avoid pregnancy so it is very hard for me to understand all this infertility. I had 6 pregnancies in 12 years, including the son I lost to adoption. Two miscarried, but I have 4 living children all conceived BEFORE I was 35 !Why do we have to "control" everything to such a degree ? It isn't Mother Nature's way...How many women have had their own biological child AFTER they adopted ? The people who adopted my son did...How can people NOT treat the adopted child differently when that happens ? When medicine sees infertility as an illness to be cured, we develope all the high tech "cures" and create all the "problems."

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  7. This is such a great post - I wish I had more than a minute to respond properly!

    Although the title doesn't sound promising, 'Adopting After Infertility', by Patricia Irwin Johnston, is EXTREMELY good at doing just what you describe - sorting through all the different losses that come with infertility, and acknowledging that adopting will not make most of those losses go away. (From memory, the six losses she identifies are loss of control, loss of the emotional experience of pregnancy, loss of the physical experience of pregnancy, lost opportunity to crfeate a child together with a beloved partner, loss of genetic link between past and future and lost opportunity to parent). The first section of the book (it's in three sections) is really good at helping both of you (if you are part of a couple) view all of those losses, and what path (childfree living, pursuing fertility treatments, pursuing adoption) could be appropriate.

    I think she has released a newer edition, but I read and enjoyed the original. The second two sections are less unusual, but the first is WELL worth the price of the book. Highly recommended!

    -Claudia - google playing up again!

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  8. I've always felt it easier to describe "infertility" as God opening or closing the womb. Really, "infertility" is a label made up by the medical professionals, given to anyone who has not been able to get pregnant after a year of trying. (That is how you get the title. It does not bring into the discussion the causes, which could be PCOS, etc). Since, God controls when to create life inside the womb, He is not on a timescale of 0-12months only! I think it helps to say, "God has closed my womb at this time. He may choose to open it again later, but I am not 'infertile'". "Infertile" sounds like there is something wrong with you, like you have a disease or something (Maybe some people do have some real medical conditions that have caused their inability to get pregnant, I don't know. But there are a lot of people who it just hasn't happened for them yet).

    And when you consider that God can open or close the womb (meaning make the conditions favourable for pregnancy and do an active work to bring the sperm and egg together), you can then look at why God has done so, and what His purpose is in it. Maybe His plan all along is for you to adopt. You would never have known that is what you are supposed to do, if He hadn't closed the womb in the first place. Maybe His plan was for you to live as a family of two. But it seems insensitive sometimes to go up to someone who is struggling and say, "Why can't you get pregnant, are you infertile?" ""Or why are you adopting, are you infertile?"

    Just my opinion on things. Thanks!

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  9. Aren't 'opening' and 'closing' the womb labels too? It is so important to deal with infertility and it's losses and grief quite separately, particularly if adoption is the goal.If that is not dealt with effectively, parenting an adoptee will be made harder for both adopter and adoptee.
    I lost my first baby at 16 weeks on the first anniversary of my afather's death.I had 3 pregnancies in 18 months, two lost and one succesful following a time of infertility.I turned to a skilled acupncturist for help with infertility and recommend it to all.Birth does not cure adoption loss any more than adoption cures infertility.

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  10. I, like Von, have trouble telling people it's "God's plan" foremost, because I don't find it helpful when it gets said to me and secondly, because I don't really believe that.

    Acknowleding the medical effects of infertility shows a tangible problem which means there is often a tangible solution. Saying "God is keeping me from getting pregnant" does not pose the same problem-solution scenario: basically, you're saying God is causing your suffering for who knows what reason. I'd rather focus on excesses of insulin that were shutting down my ovaries because there's help for that. It's a real medical problem, not thrust upon me by God, but something I could help by changing my diet, seeing a therapist for stress, and taking pills.

    I don't believe God causes suffering. I believe that suffering is the product of living within an imperfect environment with imperfect bodies and imperfect people. He makes the best of suffering but I don't think he purposely puts us through horrible things just to make a point or hammer out his ultimate plan: he's God, he can bring about his plans any way he wants to without suffering. Saying God plans suffering is like saying God could have done something a more gentler way but didn't, leaving the person asking "why me and not someone else?"

    I do not believe God caused my mother's infertility any more than I believe that it was his "plan" for me to be conceived from sexual assault. Not my God.

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  11. Well said, Amanda--both your blog post and your follow-up comment/response to anon.

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  12. Thanks for this post - well said! As a prospective adoptive (from foster care) mother, and someone who's experienced infertility, I can definitely agree (and identify with) two of your thoughts in particular:

    1) Adoption does not cure infertility.

    - Our decision to pursue adoption was based on the desire to invest in the lives of children through parenting kids who need families. It does not change, fix, or cure the loss that is infertility... nor should be expected to! My grief over the loss of the opportunity to be pregnant, give birth, breastfeed, etc., will never be erased by bringing children into our home, and frankly those grief and loss issues are ones that I need to own and walk through as my own BEFORE children join our family, and at many points after that as well. It's my desire that my investment in my own emotional/mental health now will assist in allow me to be more present and successful in parenting and supporting our children as they address the grief and loss issues in their own lives. I hope that I can learn skills in processing loss so that I can help them to do the same.

    2) "Just adopt" is an insult to everyone involved.

    - Frankly, I've always found the idea that someone can "just adopt" to be just a pile of junk. The process of adoption (at least here in Canada) is not 'simple' or 'easy' or something that you can 'just' do easily. We thought long and hard about moving forward simply because it's such an invasive and lengthy process... and after years of invasive and emotionally devastating infertility, we wanted to be sure that we had the energy and stamina to have someone poke and prod into every area of our personal, relational, social, financial, and medical lives. Definitely not something to 'just' do!

    Just my 2 cents, though! I'll have to think about which books I've read that would be good to recommend them, and will be happy to post again should I find any that would be good to share! :-)

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  13. I love this post, but I am too tired to post a just response. I will return, just wanted to say I love the way you think, girl.

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  14. Thank you for your heartfelt post and for offering to compile resources.

    In addition to the book, Silent Sorority, Pamela Tsigdinos also hosts a blog that carries stories of women building new lives after infertility. The blog aim is to help women confronting involuntary childlessness find a path to healing after infertility: http://blog.silentsorority.com

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  15. Thank you so much for posting this! As an infertile woman who is in the process of adopting for the first time, this has been on my mind way too much!

    And I wonder how I am going to talk about this with my son someday -- does the fact that we tried IVF 4 times before looking at adoption mean that he is somehow "second-best" in my heart? Heavens no! But I can see how he might worry about that.

    And then it occurred to me that he and I share parallel losses: I have lost the opportunity to know my biological child, just as he has lost the opportunity to know his biological mother. These losses are not the same, and they don't cancel each other out. They really don't.

    And yet I feel like there is something in there -- something important -- that can help us both. That I can re-assure him that he has never been second-best and that I can respond with more empathy and love when I sense that he needs to find out about about his past.

    These conversations are years away. Maybe even decades. But I hope that when the time comes my own experiences with loss can help him to come to terms with his own.

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  16. A mother denies that she is very hurt by not being able to be pregnant and having a child with her DNA by saying adoption was the exact same experience
    getting pregnant with pcos

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  17. In "my thoughts on adoption" you talk about different forms of privilege. Perhaps one was forgotten - despite your documented stuggles with infertility as above, you were able to parent a child from infancy. You are a breast-feeding, baby-wearing Mama. Do you have a nice, neat term for this privilege, as you do for other privileges listed on "my thoughts on adoption"? And are those of us who are not as fortunate as you have been, and who are not prepared to foster a child, and who have no illusions about adoption - issues around religion, costs, social issues, etc - monsters? You have tremendous compassion for first mothers and fellow adoptees. They are not the only people to whom fate has dealt an incredibly painful blow. Those of us who can never be fertile, and have tried for a decade, are also trying to love, be in a family, and find their place in the world. We don't have to do it your way in order to be good people.

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  18. Anon, welcome to my blog on which, I will remind you, you are a guest. If you want me to answer a question from my point of view, which I am more than happy to do, I would prefer you to not be completely rude to me in expecting me to do so.

    I do not know what it is you have or have not read on my blog but it is clear you have not understood the intent of this post, which IS about compassion for people struggling with infertility, nor have you understood the bulk of my blog. If you had you would know that I have compassion for all people, people with infertility included, including continuously expressing support for my parents who struggled with infertility and tried to conceive for over 10 years. Don't you think I grew up seeing the pain in my mother's eyes? Don't you think I know that's the only reason I was in their family, why they decided to adopt me had they not been able to give birth which was their first plan? Do you really think I am not sensitive to them and that it doesn't impact me too?

    The fact of the matter is, I never said anyone was a monster--I simply find that to be an outrageous assumption to draw from this blog. YES, being able to give birth is a privilege. ABSOLUTELY! It's unearned, and it is unfair that some people can experience childbirth but others cannot. It doesn't need a "neat" label (and truly, your curtness here is not necessary), it already has one: we're discussing medical issues and "ability" here. It's not fair that some people have any physical or health advantage where others do not, for any reason no matter what the advantage may be. And yes, ability is covered on my "about" page as you can see.

    That being said, although oppression and a lack of privilege is absolutely unfair, it is not OK to become ignorant to one's impact on others or put others at a disadvantage. This is why adoption MUST be about being ethical at all times. As much compassion as I feel for a mother who is not ready to parent or a person who wants to parent but can't conceive--adoption isn't about catering to all of their problems because a child's problems and needs are what come first in adoption. Adoption is not about fixing an original parent's problems nor is it about fixing an adoptive parent's problems. Adoption is not something that should be viewed or fashioned after solving the injustices in the lives of adults. I don't understand how this concept would even begin to be offensive to adoptive parents. My parents adopted to do what was best for a child and meet a child's needs; they can't agree with this concept more.

    Adoption should solely be about compassion for and fulfilling the rights and needs of a child in need. Period.

    What is building a family, through adoption I assume you mean, "my way" entail, exactly? When have I ever laid out how, precisely, people must adopt at all times (considering the recent blog post where I ask a question on behalf of a friend of mine who may privately/domestically adopt her family member's infant)? What's "my way?" My way is simple: uphold the rights of a child at all times in adoption--no matter what.

    Is there a better way to build a family or adopt a child that doesn't involve putting their rights first? I'm confused to know.

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